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Dear Dr,
We want to keep you informed about everything ILADS is doing to
spotlight the historic Infectious Diseases Society of American (IDSA)
hearings this week, Thursday, July 30th. We’re hearing from so many
people who want to get involved. We thank you!
The hearings are in response to a lawsuit against the IDSA, brought by
Connecticut's Attorney General Richard Blumenthal. In his groundbreaking
lawsuit, AG Blumenthal charged that the IDSA guidelines for Lyme disease
prevent many seriously ill patients from getting necessary treatment. A
2008 settlement resulted in the IDSA agreeing to create a new panel to
review its guidelines.
ILADS supporters and other Lyme advocates will gather at our Lyme Watch
Media Center, in the Congressional Room on the lobby level at the J.W.
Marriott Hotel, 1331 Pennsylvania Ave. NW, from 8am to 5pm. The Marriott
is just a few blocks from the hearing.
At the Lyme Watch Center, ILADS will be hosting a live chat on Twitter
as we follow the hearings all day. We look forward to your
participation! You can find out more about this live chat below.
Thanks again for all your support!
Regards, ILADS
Watch the IDSA Lyme Review Panel and Share Your Thoughts
Patients Around the World Need to Spotlight these Historic
Hearings
When: Thursday, July 30, 2009, 8:00 a.m. to 5:00 p.m.
ET
Where: Talk to others watching hearings on-line at
Tweetchat.com Enter #Lymewatch room
It’s a pivotal moment in the heated medical debate surrounding Lyme
disease. Controversial treatment guidelines that chronic Lyme patients
say keep them from being diagnosed and properly treated will be reviewed
in a landmark hearing Thursday, July 30 in Washington D.C.
Read more »
Historic Hearings On Most Controversial Disease in U.S.
(Washington D.C.) – It’s a pivotal moment in the heated medical debate
surrounding Lyme disease. Controversial treatment guidelines that
chronic Lyme patients say keep them from being diagnosed and properly
treated will be reviewed in a landmark hearing Thursday, July 30 in
Washington D.C. Lyme disease is the fastest growing infectious disease
in the United States today, affecting up to 300,000 Americans each year.
Many think the tick-borne illness is easily cured, but what happens when
it’s missed initially or improperly treated? Patients argue that Lyme
disease becomes chronic—or long term.
"The medical establishment will be forced to consider the strong
scientific evidence that Lyme disease can become persistent and , long
term infection that may require more aggressive treatment than what is
allowed in the current treatment guidelines", says Dr. Daniel Cameron,
President of the International Lyme & Associated Diseases Society (ILADS).
Cameron will join several doctors, scientists and patients testifying at
Thursday’s hearing.
Read more »
ILADS Facebook Page Launch
Please join our new Facebook page. It’s a great way to stay in touch and
keep up on developments. You can friend us on Facebook at: ILADS Lyme
Society or
click here.
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